Commitment to Patients
At Sobi, we are committed to developing solutions that improve everyday life for people living with rare diseases.
Throughout our history, we have worked with the rare disease community to provide access to innovative treatments. We continue this cooperation across a wide range of areas and see it as vital for the future. A key element in rare diseases is increasing the understanding and knowledge about rare diseases and treatments.
We strive to provide the education and support patients and their caregivers need.
Rare diseases affect small groups of patients and are often life-threatening or result in chronic disability. There are approximately 7,000 known rare diseases but only 400 approved treatments.
In the U.S., orphan diseases are defined as those that affect fewer than 200,000 people.