Sobi North America Supports Rare Disease Day® and Joins Global Movement to Raise Important Awareness for Rare Diseases

Sobi North America has joined forces with rare disease patients and health care advocates in the U.S. and Canada to support Rare Disease Day on February 28. Rare Disease Day is an international awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges faced by patients and their caregivers.

Sobi North America has joined forces with rare disease patients and health care advocates in the U.S. and Canada to support Rare Disease Day on February 28.  Rare Disease Day is an international awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges faced by patients and their caregivers. 

“Sobi’s main focus is patients with rare diseases where there is a significant, unmet need for medicines”, said Rami Levin, President Sobi North America. “Rare diseases have traditionally been overlooked and even today, many patients do not receive adequate treatment or support.   Raising awareness of the need to develop and provide new treatments for rare diseases offers significant hope for patients and their families, and benefits society as a whole.”

According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people.  Nearly 1 in 10 North Americans, live with a rare disease – affecting over 30 million people – and two-thirds of these patients are children. There are more than 7,000 rare diseases and only approximately 450 available medical treatments. 

Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year) – the rarest date on the calendar – to underscore the nature of rare diseases and what patients face.  It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe, and is now observed in more than 80 countries. Rare Disease Day is sponsored in the U.S. by the National Organization for Rare Disorders (NORD)® and in Canada by the Canadian Organization for Rare Disorders (CORD)®.

Sobi in North America commercializes treatments with a particular focus on inflammation and genetic disorders. 

For more information about Rare Disease Day in the U.S., please visit www.rarediseaseday.us and in Canada please visit www.raredisorders.ca

About Sobi

Sobi is an international specialty healthcare company dedicated to rare diseases. Our mission is to develop and deliver innovative therapies and services to improve the lives of patients. The product portfolio is primarily focused on Haemophilia, Inflammation and Genetic diseases. We also market a portfolio of specialty and rare disease products for partner companies across Europe, the Middle East, North Africa and Russia. Sobi is a pioneer in biotechnology with world-class capabilities in protein biochemistry and biologics manufacturing. In 2014, Sobi had total revenues of SEK 2.6 billion (USD 380 M) and about 600 employees. The share (STO: SOBI) is listed on NASDAQ OMX Stockholm. More information is available at www.sobi.com. For more Information on Sobi North America please visit www.sobi-northamerica.com

For more information please contact

Rami Levin, President Sobi North America

T: +1 610-228-2625

E: rami.levin@sobi.com